March 13, 2018
三阴性乳腺癌幸存者发现ho)pe with clinical trial
由Mena El-Sharkawi
一年多的一点,Robbie Johnson拼命寻找右边metastatic breast cancer treatment.
“我一直没有治疗,我知道癌症在整个身体中蔓延,”她说。“我的丈夫和我在一个非常低点的精神上。”
Robbie最初被诊断出患有HER2breast cancerin October 2013. She underwent treatment in her home state of South Carolina, but 2 years later, a nurse practitioner noticed a lump near her collar bone during a follow-up appointment. A biopsy confirmed that the cancer had returned. This time, though, doctors were a lot less certain about the type of breast cancer she had, with the hospital changing her diagnosis from HER2 to triple-negative and back to HER2.
三阴性乳腺癌诊断
Following triple negative chemo treatment, she underwent surgery in March 2016 to remove the lump below her collarbone and followed up with HER2 chemo treatment until July 2016. At the end of July, the lump below her collarbone returned. CT and bone scans confirmed the cancer was spreading all over her body. Her doctors stopped all medications with the hopes of enrolling her into aclinical trial, but those plans kept stalling. Fed up, she did her own research and decidedMD Anderson在她应该去的地方。另一位医生的第二意见推荐了她直接前往MD Anderson.
2016年9月2日,Robbie会面Sadia Saleem,M.D., and she hasn’t looked back.
“Dr. Saleem listened. She was accessible and she personally called us back and talked to us several times that first week we were there,” Robbie says. “I felt like I was getting the attention that I thought we needed because it was definitely a snowball going downhill at that time.”
Saleem订购的新活检和宠物扫描显示Robbie患有三重阴性乳腺癌,她的疾病蔓延到她的锁骨,肩膀,肝脏,肺,右臀和肋骨。Saleem建议罗比注册临床试验,检查药物Olaparib和AZD5363治疗复发性癌症的组合。罗比同意给它拍摄。
“It made sense that we were going to have to do something a little out of the ordinary since it’d spread throughout my body, and it’d spread while I was on treatment,” she says.
三阴性乳腺癌临床试验显示承诺
虽然Robbie正在等待试验中的开放式插槽,但她曾占据了叫做Xeloda的口腔化疗药物和称为IXEMPRA的药物,其通过IV施用。既不缩减肿瘤,所以萨利姆把她从药物中拉开,为临床试验做好准备。2016年11月22日,罗比每天两次服用两次Olaparib,每天两次服用两次,每周四次。
“When I started the trial, you could feel the lump in my buttocks and the lump below my shoulder blade. But around March and April, both the doctor and myself could tell they were getting smaller,” she says. “Now they’re both gone.”
所有的肿瘤都急剧缩小。罗比还有一些癌症斑点,所以她将无限期地留在审判。药物一直导致她一些恶心和腹泻,但两副作用都是可管理的。
“我感觉好极了。我在精神上在一个非常好的地方,“她说。“我只是继续我的生活。我去做任何我想做的事。我打高尔夫球;我去钓鱼了。我的丈夫和我有自己的事业,所以我帮忙了。我清洁,我做饭。我当然不是在一年前的同一个地方。“
Lessons learned from metastatic breast cancer
罗比希望通过分享她的故事,她可以赋予他人掌控他们的治疗,而不是害怕在没有意义的情况下发表讲话。
“没有至少试图得到你应得的答案,不要在任何约会中走出任何约会。你必须是你自己最好的倡导者。你不能满意。做你的研究。乐动体育LDsports中国她说,不要满足于你不舒服的事情。““如果某些事情感觉不对,可能会有一个问题。去获得第二和第三种意见。“
申请预约MD Anderson线上or by calling 1-877-632-6789.
Don’t settle for something you’re uncomfortable with.
Robbie Johnson
幸存者